DANCE

Well Jailynn finally was able to try a dance class. it was at a different dance school. Jailynn had a good time but on her own terms. She really paid no attention to the dance teacher. She was more fascinated with the environment. The big mirrored wall was a big hit. She did let the teacher put a Belle costume in her and carried around a fake rose smelling it. We may keep going for the 6 weeks to see if Jailynn will start to pay attention. I have to talk to the teacher first because it was unbearibly hot there and no fans or air conditioning. If that is always the case we cannot go it is just too hot! If this works out and she "gets it" We may sign her up for the dance school yera but at a different place that I found closer to home.

Jailynn made a new friend named Addi at summer school. They both get very excited when they see each other. The first day Jailynn went right up to her and got in her face and grabbed her hand too say hi. Luckily that did not upset or frighten Addi. Addi has speech difficulty and wears 2 AFO's and glasses so she has some things in common with Jailynn. They are so cute playing with each other. It just melts my heart!

Another hemi surgery parent that we met lat year at the reunion called me yesterday. She was looking for some info that unfortunately I didnt have. She did ask about jailynn and the family. Then she told me she remember me well and that I was an inspiration to her because of how much was going on in my life and stress... having a hemi child, school full time and a blind husband ect... and she said that I was vibrant and handled it well. It was such a wonderful and amzing compliment. It made me feel really good!

Tomorrow is session 3 of hippotherapy!


Jailynn now says "I'm mad" and "ay-yah" which i think is an expression of frustration or anger that she learned from the characters in the cartoon Ni Hao Kai-Lan that teaches chinese.
I am trying to update more!

eye doctor

Jailynn saw her eye doctor today. Her prescription stayed the same. Jailynn was upset by the eye drops of course and did not like having her eyes examined after the drops did their job. She has always beenvery uncooperative at the eye doctor. Still she did a little better this time. She is becoming such a big girl. They doctor was pleasantly surprized to see has much she has grown and hear her improved speech oh and to meet baby brother!

A dance school returned my call so we will go try it on Tuesday. Now i have to reschdule her brace appoinment to a different day. The dance class is only 6 weeks long and start Tuesday. We can always schedule the brace appt for Friday.

We want to work on potty training this summer. I am just afraid too much will be going on. Also with summer school I am not sure how much the staff will do with it. I want to put her on the potty every 30 mins or hour maybe. I cannot wait until she can use the potty, evebn thoiugh I know it may eb a long time. I pray by kindergarten but I know she will be successful when her body and brain are ready.

Pictures and AFO's

Jailynn saw Dr Sponsellor today. He gave us a prescription for a new AFO. We are trying a hinged this time. I asked him what would be best and he said to try a hinged one. He said Jailynn does not need an orthotic in her other shoe. He said the 2 downsides to a hinged one is they take up more room in shoes, cue me crying at the shoe store ugh! and two they do not last as long/ durability. I hope this works our for Jailynn. We have an appointment for Tuesday the 29th to have her AFO made well to be casted that is.
Her are some requested pictures... Kelly :-)

Dance Class wasted

Yesterday we drove over an hour to Westminster for a dance class. The studio was offeing free trial classes for special needs classes that would include an OT in class. I had spoke to 1 of the 2 owners last month about it. I doubled checked the webiste yesterday morning for the address and right at the top it still adverstised the classes. Well we get there at 4:40 and no one is there, doors are locked and the answering machine is on. I called and left at message at both numbers available. I also sent an email after waiting 20 mins and leaving. Well last night the owner emails me back that she is sorry but they decided to cancel the class due to lack of interest. I wasted time gas and mileage on my car 43 miles one way! Plus I made my 2 children sit in the car for over 2 hours for nothing! She offered that we could come next month for a class or two to try for free, but I dont know that I want to do it now. It is so far and I am so mad. Also we are already going to be making the commute 1-2 times a week for hippotherapy and that is 42 miles one way.

I will keep looking for dance closer to home. jailynn loves music.

hippotherapy

Jailynn had an eval and first session today of hippotherapy or equine therapy. Jailynn smiled ear to ear when placed on the horse Snickers. I thought she would cry but she did so well. We were able to get her to hold on with both hands! even Lefty the affected hand! She rode for atleast 30 mins. The therapist even said that Jailynn's posture was better after riding. We will be going back next week. I made calls and emails fro funding today because our insurance does not pay for it and it was $125 today and $95 for each additional session.
I had to borrow my MIL's camera for pictures so I will get them up when I can.

warming up just a bit

Jailynn is still not sure what to make of this baby in her house. She calls him baby. We have gotten her to say "Tamden" (Camden)or "budder" (brother) a few times.

The other day when he cried out she grabbed Jason's hand and said get up daddy. She wanted Jason to go get the baby cause he was crying. Then Jailynn started crying because he was crying. Today I got her to hug him. Yesterday I did get her to kiss his forehead.


He is congested and Jailynn has yellow snot. It really sucks having 2 sick kiddos. I cant do anything to make it better. I am going to see if I can get the pediatrician to let me bring Jailynn with me to Camden's appointment to check her out.

This week is Jailynn's spring break. So lots of time with mom and dad and of course new baby brother.

a new family member

Jailynn's baby brother Camden was born on Thursday March 18, 2010. He was 7 pounds and 4 ounces and 19 3/4 inches long. He is healthy and happy! Jailynn is still warming up to him. She will occasionally tell him "hi baby". Not much more than that though.

On a sad not we found out that a little boy that we met and came to hold close to our hearts through the Hemispherectomy foundation passed away on March 20, 2010. My heart is breaking for his family. Rest in Peace Srikar! You will be greatly missed.