So Jailynn is now on depakote. Today is the last day that she is taking the diazapam(instead of ativan). The depakote is in a capsule that we have to opena nd sprinkle in applesauce. 1/2 a capsule this week twice a day and next week a whole capsule twice a day. I am calling her neurologist on monday to see if he is going to take her off one of her other meds or leave her on 3. I wonder with the depakote how long her honeymoon phase will last. I am really wanting to pursue surgery now. I want her to be med and seizure free, so they meds will not slow down her learning and make her so tired. I am just wondering how much a toll the surgery will take on her. each child is so different. Talking to other parents helps but you still never know how your child and yourself will handle it. I am pretty calm now but what about surgery day and after that!? I think I will fall apart! When I think about it I imagine my little girl in a bed with her head shaved and sticthed up and it breaks my heart. She is too young to understand it and why it is happening to her. I think the rehab will be hard on her too. She is not mentally old enough to explain this too her.
Its so hard because no one can tell us wjhat the right thing is and no one can make this decision for us.
So far on the depakote and diazapam I have not seen any seizures. She has also been in a better mood.