MerryChristmas!

These are pictures of Jailynn at the mall with Santa and a few I took of her in front of our tree. I used the ones I took as our Christmas card picture. Look how long her hair is! Oh and she loved Santa!

Right now we are watching the blizzard snow fall.

A few Pictures of Jailynn

Jailynn's her is growing nicely. We left some of her bangs long her last hair cut so they can be pulled back to cover her one bald spot were her incision lines met from the T shaped cuts from surgery. I can finally get most of her long bangs pulled back now.

She has been doing great wearing her glasses all day.

She is giving us a bit of trouble taking her depakote sprinkles. I keep having to hide it in different things like cheesecake and chocolate pudding.

She sees her neurologist Dec 21st, it is possible we can start a med wean. Not sure if he will want to wean tegratol tablets or depakote.

She has begun to notice outside christmas lights in the neighborhood and really likes them now. She says "lights, lights!"

Jailynn's Progress

We have Jailynn's first report card. Being only 3 it is not a regular report card with A's and B's but it is marked by skills, mastered emerging, and unsuccessful but tried.

We have notes from all of her therapists about her progress. Jailynn is making great progress in OT, PT, Speech and special education goals. She is getting better at socializing and playing with other children at school.

All of the behaviors we had went to behavioral therapy for have resolved even though we stopped therapy due to the time and missing school days.

A few days ago she said her longest utterance, "Oh Mommy, it's medicine time!" Jason and I were both thrilled. She mostly says two and sometimes 3 words per phrase.

On bad thing is she is getting really stubborn now about taking meds. Especially the depakote. Everyone has always been so impressed how good she was about letting me give her meds. She even sometimes refuses a gummy itamin, which tastes yummy.

She sees her neuro Dec 21st, possibly a med wean will start then.

Sick Jailynn

My poor little one was sent home early today for getting sick. She has had H1N1 and Flu shots but there are always other germs. I swear if there is a germ in a 20 mile radius this girl gets it. It has not been medically diagnosed but I know she has a weaker immune system. The medical issues never cease.

The soon to be big sister

We found out today that Jailynn is going to have a baby brother.
We keeping asking her to say brother and she will say sister and laugh, that little stinker!

Her daddy and I cannot agree on the name yet. I want Camdyn and he wants Caleb. Jailynn said yes to Camdyn today and not to Caleb and I could get her to repeat Camdyn several times.

What Jailynn has been up to

Jailynn is still loving school. Everyday she is so happy when I get her off the bus. Whenever we go outside she will look towards the end of the street and say "bus, bus". Her bus driver and aide are always telling how she was singing or talking or counting for them and the other bus riders. Jailynn has now starting looking out the window when the bus stops at our street and smiling or waving at me before she is taken out of the car seat. Once i get her we walk home together and she will normally sing or dance while we walk.

She still does not like coloring too much only for 1 minute or less. She actually get a page of homework which is mostly coloring. I just let her scribble her best which sometimes is only a line or two.

I saw today that she has become quite good at pulling out her two wooden chairs from her little table at home. She will pull them out and back up to one and now she will actually try looking behind her before she sits. She is pretty successful at it now!

She has also gotten very good at roll and throwing a small ball. This is all credited to her Nanny (grandma). She spends 15mins to an hour everyday next door having "nanny time". One of Jailynn's big kicks is telling or asking people to "sit down" so nanny and her sit down a lot and often get one of the dogs tennis ball and toss and roll them back and forth. She has learned from watching Nanny do it to hide the ball behind her back and say " One, two, three!" then release the ball.

She likes to find things to put on her head or others heads and tell you hat for example the dogs sweater little bowls ect...

Jailynn also loves to tell people "see ya and bye and I gotta go" then she makes you walk away so you can come back and make her laugh.

I love this little girl so much. I love seeing and hearing when she starts doing new things.

singing

When Jailynn came home today from school I sat her on the couch to take off her jacket. She started singing something but I could not make out the words. Me and daddy discovered that she was trying to sing "Where is Thumbkin?" It was all garbled but she had the tune down perfectly. Later in the tub she started singing the "I love You" song from barney to her Barbie doll. I have been singing that for about 2 months to hear when I turn off her light and go to lay her down in the crib. When she sang it to Barbie she even did the kiss sound. She has also been singing "friends, friends 1,2,3. All my friends are here with me" She is picking most of this up at school!

We have taken her to behavior therapy appointments 2 times now. this Friday will be our 3rd appointment. 2 weeks ago we saw the therapist and ever since that 2nd time Jailynn has not played in her dirty diaper at all. We have been sneaking in her room in the middle of the night and placing toys in at the bottom end so that when she wakes up she will find them and play with them instead of poop. Also when we get her out of the crib after a nap or in the morning if she has not done it we sing a made up "Clean hands" song to her. she now tries to sing that song as well and she reminds you if you forget to sing it! These efforts have been working so well.

Since therapy started she has also stopped kicking me to death when I change her diapers. We lay on the praise really thick and it is working so well!