Dance Class wasted

Yesterday we drove over an hour to Westminster for a dance class. The studio was offeing free trial classes for special needs classes that would include an OT in class. I had spoke to 1 of the 2 owners last month about it. I doubled checked the webiste yesterday morning for the address and right at the top it still adverstised the classes. Well we get there at 4:40 and no one is there, doors are locked and the answering machine is on. I called and left at message at both numbers available. I also sent an email after waiting 20 mins and leaving. Well last night the owner emails me back that she is sorry but they decided to cancel the class due to lack of interest. I wasted time gas and mileage on my car 43 miles one way! Plus I made my 2 children sit in the car for over 2 hours for nothing! She offered that we could come next month for a class or two to try for free, but I dont know that I want to do it now. It is so far and I am so mad. Also we are already going to be making the commute 1-2 times a week for hippotherapy and that is 42 miles one way.

I will keep looking for dance closer to home. jailynn loves music.

hippotherapy

Jailynn had an eval and first session today of hippotherapy or equine therapy. Jailynn smiled ear to ear when placed on the horse Snickers. I thought she would cry but she did so well. We were able to get her to hold on with both hands! even Lefty the affected hand! She rode for atleast 30 mins. The therapist even said that Jailynn's posture was better after riding. We will be going back next week. I made calls and emails fro funding today because our insurance does not pay for it and it was $125 today and $95 for each additional session.
I had to borrow my MIL's camera for pictures so I will get them up when I can.

warming up just a bit

Jailynn is still not sure what to make of this baby in her house. She calls him baby. We have gotten her to say "Tamden" (Camden)or "budder" (brother) a few times.

The other day when he cried out she grabbed Jason's hand and said get up daddy. She wanted Jason to go get the baby cause he was crying. Then Jailynn started crying because he was crying. Today I got her to hug him. Yesterday I did get her to kiss his forehead.


He is congested and Jailynn has yellow snot. It really sucks having 2 sick kiddos. I cant do anything to make it better. I am going to see if I can get the pediatrician to let me bring Jailynn with me to Camden's appointment to check her out.

This week is Jailynn's spring break. So lots of time with mom and dad and of course new baby brother.

a new family member

Jailynn's baby brother Camden was born on Thursday March 18, 2010. He was 7 pounds and 4 ounces and 19 3/4 inches long. He is healthy and happy! Jailynn is still warming up to him. She will occasionally tell him "hi baby". Not much more than that though.

On a sad not we found out that a little boy that we met and came to hold close to our hearts through the Hemispherectomy foundation passed away on March 20, 2010. My heart is breaking for his family. Rest in Peace Srikar! You will be greatly missed.

So Far So Good

Jailynn has been totally depakote free for several days and she seems to being doing just fine! Just being her silly little self!

BYE BYE DEPAKOTE!

Jailynn is now completely Depakote free. Last year at this time she was on 3 meds. She is now down to just one, Tegretol chewables 2 twice a day. In about 6 months herneuro may taper that. She is doing very well.

1 year post op!

Jailynn's hemispherectomy was over 1 year ago. February 5th, 2009 was her surgery date. Her last seizure was Feb. 24th, 2009 which we think was a result of the surgery trauma (that also happens to be my mother's birthday). So hopefully on the 25th of this month we can celebrate 1 year seizure free. As of the 21st of this month Jailynn will be completely done with Depakote Sprinkles. Then she will just has tegretol chewables for about 6 months and they we can try to wean those.
She has come so far in a year. This time last year she was not walking. She was still sedated and drugged up. Now she is running and thinks it is funny to run the other way when I call her. She is in school and loving it. She knows so many more words and loves to sing songs. She remembers every song! She loves to dance, play babies, barbies and play kitchen.

Unfortunately Jailynn hates snow and we have had 2 blizzards back to back and we are stuck inside bored.....

We are also trying to prepare her to be a big sister very soon...