Merry Christmas

jailynn loved her presents. She still is not ready to understand the whole idea and concepts. She does know that Santa says HO HO HO and two lines from jingle bells. She says "merry tistmas"! She cannot say the c sound.

She was able to open gifts very well this year. She loved her gifts. She loves her barbie house and babydolls and stroller and crib for them.

She was very excited to see family members especially Pop-Pop!

Merry Christmas everyone

MerryChristmas!

These are pictures of Jailynn at the mall with Santa and a few I took of her in front of our tree. I used the ones I took as our Christmas card picture. Look how long her hair is! Oh and she loved Santa!

Right now we are watching the blizzard snow fall.

A few Pictures of Jailynn

Jailynn's her is growing nicely. We left some of her bangs long her last hair cut so they can be pulled back to cover her one bald spot were her incision lines met from the T shaped cuts from surgery. I can finally get most of her long bangs pulled back now.

She has been doing great wearing her glasses all day.

She is giving us a bit of trouble taking her depakote sprinkles. I keep having to hide it in different things like cheesecake and chocolate pudding.

She sees her neurologist Dec 21st, it is possible we can start a med wean. Not sure if he will want to wean tegratol tablets or depakote.

She has begun to notice outside christmas lights in the neighborhood and really likes them now. She says "lights, lights!"

Jailynn's Progress

We have Jailynn's first report card. Being only 3 it is not a regular report card with A's and B's but it is marked by skills, mastered emerging, and unsuccessful but tried.

We have notes from all of her therapists about her progress. Jailynn is making great progress in OT, PT, Speech and special education goals. She is getting better at socializing and playing with other children at school.

All of the behaviors we had went to behavioral therapy for have resolved even though we stopped therapy due to the time and missing school days.

A few days ago she said her longest utterance, "Oh Mommy, it's medicine time!" Jason and I were both thrilled. She mostly says two and sometimes 3 words per phrase.

On bad thing is she is getting really stubborn now about taking meds. Especially the depakote. Everyone has always been so impressed how good she was about letting me give her meds. She even sometimes refuses a gummy itamin, which tastes yummy.

She sees her neuro Dec 21st, possibly a med wean will start then.

Sick Jailynn

My poor little one was sent home early today for getting sick. She has had H1N1 and Flu shots but there are always other germs. I swear if there is a germ in a 20 mile radius this girl gets it. It has not been medically diagnosed but I know she has a weaker immune system. The medical issues never cease.

The soon to be big sister

We found out today that Jailynn is going to have a baby brother.
We keeping asking her to say brother and she will say sister and laugh, that little stinker!

Her daddy and I cannot agree on the name yet. I want Camdyn and he wants Caleb. Jailynn said yes to Camdyn today and not to Caleb and I could get her to repeat Camdyn several times.

What Jailynn has been up to

Jailynn is still loving school. Everyday she is so happy when I get her off the bus. Whenever we go outside she will look towards the end of the street and say "bus, bus". Her bus driver and aide are always telling how she was singing or talking or counting for them and the other bus riders. Jailynn has now starting looking out the window when the bus stops at our street and smiling or waving at me before she is taken out of the car seat. Once i get her we walk home together and she will normally sing or dance while we walk.

She still does not like coloring too much only for 1 minute or less. She actually get a page of homework which is mostly coloring. I just let her scribble her best which sometimes is only a line or two.

I saw today that she has become quite good at pulling out her two wooden chairs from her little table at home. She will pull them out and back up to one and now she will actually try looking behind her before she sits. She is pretty successful at it now!

She has also gotten very good at roll and throwing a small ball. This is all credited to her Nanny (grandma). She spends 15mins to an hour everyday next door having "nanny time". One of Jailynn's big kicks is telling or asking people to "sit down" so nanny and her sit down a lot and often get one of the dogs tennis ball and toss and roll them back and forth. She has learned from watching Nanny do it to hide the ball behind her back and say " One, two, three!" then release the ball.

She likes to find things to put on her head or others heads and tell you hat for example the dogs sweater little bowls ect...

Jailynn also loves to tell people "see ya and bye and I gotta go" then she makes you walk away so you can come back and make her laugh.

I love this little girl so much. I love seeing and hearing when she starts doing new things.