I kept trying to update my care page from my black berry but it would not save!
So to sum it up. Jailynn is a hemispherectomy surgery candiate. The nerologists will discuss this at their weekly meeting on tuesday and Jailynns neurologist will call me with info about what they thought as a group. then we may be moing ahead towards surgery.
Jailynn had a rough night last night she had 4-6 seizures and towards night time she started vomitting beofre and after seizures. They ended up giving diastat twice and putting her back on her new meds. she still had seizures afterwards. she had 2-3 today, shes been having complex partial and tonic clonic ones. it started getting pretty scary. im glad to be home now and hopefully over the next few days she wil be feeling alright.
shes got tons of glue and gunk in her hair from the eeg wires and glue, i have washed her hair twice. ANy pointers on getting that out????
i am now very anxious for the next steps, i know if we go thru the surgery path she wil need a nerosurgeon appt, maybe a new mri, blood work and a neuropysch eval.