Dr K. called today and told my hubby Jay that he would call at 5 pm cause I wasnt home when he called at 10:30 am. At 5 pm today i was dying for my phone call from Jailnns doctor. by 6 pm i was angry and 7 pm i was livid. I called my best friend Summer to complain then i called my friend amanda hoping complaining to her would make the call come. she tried to calm me but finally i got a beep and it was him!
He said the discussion on Jailynn was short at the meeting. They saw 6 very clear definate ride sided seizures and a 7th fuzzy one but they know it wasnt from the left side. He said they all agreed that a HEMISPHERECTOMY was the way to go. jason and I agree and Dr K. said it would be best to just start sceduling it now, and we could always change it if we needed. Jailynn will need a MRI, neurosurgeon appt and maybe a neuropsych evaluation and bloodwork. He said Diana Pillas will set all this up. She is away til Tuesday, he said I should wait for her to call me and call her if i havent heard from her by the end of next week. I talked to Jasons brother and mom, his brother his very aprehensive and doesnt understand, (hes 21) i just think hes scared. Jays mom didnt say much at all. I am nervous but happy to have an answer.
So this begins our journey to surgery. Dr K. said we can probably get Dec2008/Jan 2009, probably middle of Jan, which could work casue school doesnt start til feb. 2nd