My name is Holly. I created this blog to document my now 4 year-old daughter Jailynn's journey with ACC, cortical dysplasia, and epilepsy. Also her brain surgery (hemispherectomy)and recovery.
Tuesday, February 17, 2009
kki
We are now at kennedy kreiger. We got here around 11 or 12. Nothing was accomplished today except getting jailynn a chair to be transported in. They sent us here with jailynns central line and a tube ( its not a regular ng tube but they have been feeding her pediasure thru it) well now kennedy will not let her have food until she has a speech and swallowing eval and they are not on jailynns schedule til friday! I have put in a call about that! Hopefully we will have great progress I want her home so bad!
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