My name is Holly. I created this blog to document my now 4 year-old daughter Jailynn's journey with ACC, cortical dysplasia, and epilepsy. Also her brain surgery (hemispherectomy)and recovery.
Friday, February 6, 2009
another update
Jason and I are here with jailynn. We have ate lunch downstairs and watched part of a movie on our portable dvd player. She's doing well. Very stubborn and still wants to move even though she is on a TON of meds! Dr kossoff came in and said he is very happy with how she is doing. 2 of my aunts wanna come later and see her and bring us dinner. Dr kossoff said they might let her move her head later tommorrown then sunday slow down meds and she should be more jailynn by monday and by thursday he said tough love ( moving and therapy) he said next monday she will probably go to kennedy kreiger rehab because they do not like to take patients on fridays at kennedy.
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