Jailynn's hemispherectomy was over 1 year ago. February 5th, 2009 was her surgery date. Her last seizure was Feb. 24th, 2009 which we think was a result of the surgery trauma (that also happens to be my mother's birthday). So hopefully on the 25th of this month we can celebrate 1 year seizure free. As of the 21st of this month Jailynn will be completely done with Depakote Sprinkles. Then she will just has tegretol chewables for about 6 months and they we can try to wean those.
She has come so far in a year. This time last year she was not walking. She was still sedated and drugged up. Now she is running and thinks it is funny to run the other way when I call her. She is in school and loving it. She knows so many more words and loves to sing songs. She remembers every song! She loves to dance, play babies, barbies and play kitchen.
Unfortunately Jailynn hates snow and we have had 2 blizzards back to back and we are stuck inside bored.....
We are also trying to prepare her to be a big sister very soon...
1 comment:
Alex was reading your blog this week, and was saying that Jailynn needed to STOP growing up. She thought that J was looking so mature. I hope all is well with the baby. Can't wait to see the two together. We are trying to get to Northern VA at some point to visit family, and will take a day to come up there to see you guys if you aren't swamped with new baby at that point. We'll let you know.
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