Jailynn saw her eye doctor today. Her prescription stayed the same. Jailynn was upset by the eye drops of course and did not like having her eyes examined after the drops did their job. She has always beenvery uncooperative at the eye doctor. Still she did a little better this time. She is becoming such a big girl. They doctor was pleasantly surprized to see has much she has grown and hear her improved speech oh and to meet baby brother!
A dance school returned my call so we will go try it on Tuesday. Now i have to reschdule her brace appoinment to a different day. The dance class is only 6 weeks long and start Tuesday. We can always schedule the brace appt for Friday.
We want to work on potty training this summer. I am just afraid too much will be going on. Also with summer school I am not sure how much the staff will do with it. I want to put her on the potty every 30 mins or hour maybe. I cannot wait until she can use the potty, evebn thoiugh I know it may eb a long time. I pray by kindergarten but I know she will be successful when her body and brain are ready.
My name is Holly. I created this blog to document my now 4 year-old daughter Jailynn's journey with ACC, cortical dysplasia, and epilepsy. Also her brain surgery (hemispherectomy)and recovery.
Friday, June 25, 2010
Thursday, June 24, 2010
Pictures and AFO's
Jailynn saw Dr Sponsellor today. He gave us a prescription for a new AFO. We are trying a hinged this time. I asked him what would be best and he said to try a hinged one. He said Jailynn does not need an orthotic in her other shoe. He said the 2 downsides to a hinged one is they take up more room in shoes, cue me crying at the shoe store ugh! and two they do not last as long/ durability. I hope this works our for Jailynn. We have an appointment for Tuesday the 29th to have her AFO made well to be casted that is.
Her are some requested pictures... Kelly :-)
Her are some requested pictures... Kelly :-)
Tuesday, June 22, 2010
Dance Class wasted
Yesterday we drove over an hour to Westminster for a dance class. The studio was offeing free trial classes for special needs classes that would include an OT in class. I had spoke to 1 of the 2 owners last month about it. I doubled checked the webiste yesterday morning for the address and right at the top it still adverstised the classes. Well we get there at 4:40 and no one is there, doors are locked and the answering machine is on. I called and left at message at both numbers available. I also sent an email after waiting 20 mins and leaving. Well last night the owner emails me back that she is sorry but they decided to cancel the class due to lack of interest. I wasted time gas and mileage on my car 43 miles one way! Plus I made my 2 children sit in the car for over 2 hours for nothing! She offered that we could come next month for a class or two to try for free, but I dont know that I want to do it now. It is so far and I am so mad. Also we are already going to be making the commute 1-2 times a week for hippotherapy and that is 42 miles one way.
I will keep looking for dance closer to home. jailynn loves music.
I will keep looking for dance closer to home. jailynn loves music.
Friday, June 18, 2010
hippotherapy
Jailynn had an eval and first session today of hippotherapy or equine therapy. Jailynn smiled ear to ear when placed on the horse Snickers. I thought she would cry but she did so well. We were able to get her to hold on with both hands! even Lefty the affected hand! She rode for atleast 30 mins. The therapist even said that Jailynn's posture was better after riding. We will be going back next week. I made calls and emails fro funding today because our insurance does not pay for it and it was $125 today and $95 for each additional session.
I had to borrow my MIL's camera for pictures so I will get them up when I can.
I had to borrow my MIL's camera for pictures so I will get them up when I can.
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